Medicine shortages, inconsistent follow-up systems and a lack of awareness continue to create challenges for people living with rheumatic heart disease in Fiji.
20-year-old Heart Heroes Fiji Youth Club and National Heart Champion with Heart Heroes Fiji Organization President Jonathan James Lord says this was highlighted during the Regional RHD Forum.
He says one of the biggest issues patients face is accessing regular treatment and support.
Lord says there were previously reminder systems in place for injections and medical check-ups, but these are no longer as consistent as they once were.
He also highlights ongoing shortages of benzathine penicillin, saying some patients travel long distances to health centres only to be told the medication is unavailable, forcing them to seek treatment elsewhere.
Lord says these challenges place additional pressure on patients and their families, particularly those who depend on public health services for regular care.
Lord who was diagnosed with RHD at the age of 7 years also believes greater awareness and education about rheumatic heart disease could help reduce its impact, saying early intervention and prevention are critical.
Insert:Lord on family support 18th June
Lord says his own experiences motivated him to become involved in advocacy work to ensure other patients do not face the same struggles, including feelings of isolation and a lack of support.
He now encourages people living with rheumatic heart disease to continue attending their injections, stay engaged with treatment and seek help when needed.
